The first couple weeks at home were really hard. She weaned off pain medication pretty quickly, but the bar between her legs made the casts really heavy and she couldn't move comfortably on her own at all. So everything took a long time and was very physical for me. I would not have gotten through it without the help of family, especially my mom. As time went on, she became more mobile and able to move herself around. She now gets herself around the house in the wheelchair very well.
While staying at home, mostly on the couch, was not the most fun August she has ever had, we did have a college student-nanny who kept things fun; I threw a huge birthday party for her about halfway through which gave her a big lift; and different friends and family made time to visit her so she had a lot of good quality time with a variety of people.
After she gets the casts off, she will be fitted with new AFOs. I'm waiting for insurance approval on a walker that I believe she will need to use for several weeks before she is ready to get back to her crutches. Her physical therapist is now coming to our house twice a week and their work together is excellent.
Hi,
ReplyDeleteMy daughter had SDR in St Louis MO in 2014 and now she needs to go for Hip surgery. I am talking to Dr. Novacheck from Gillette Hospital to do the surgery. We are from Houston TX. My daughter is 9 year old who has Cerebral Palsy. While searching about Gillette Hospital and hip surgery I found your blog and I read your daughter's surgery experience. Just wanted to check with you how she is doing now.